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Beijing Changier Education Foundation visits children with rare diseases

Release date:Oct 31,2023 Source:Changier Pageviews:-
Recently, the Party branch of Beijing Changier Education Foundation, in collaboration with Beijing Zhongpuxin Rongwei 4S Store and Seeyon Public Welfare, visited 21 impoverished families in Xinglong County, Chengde City.

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Recently, the Party branch of Beijing Changier Education Foundation, in collaboration with Beijing Zhongpuxin Rongwei 4S Store and Seeyon Public Welfare, visited 21 impoverished families in Xinglong County, Chengde City.

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At six in the morning, Liu Yingtao, a volunteer from Beijing Zhongpuxin Rongwei 4S Store, and Li Ni from Seeyon Public Welfare, drove to pick up other people.They spent more than 4 hours on the way to arrive in Xinglong County and delivered necessities for the 21 families.

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Subsequently, the volunteers visited the home of Yaoyao (pseudonym), a child suffering from a rare disease. In addition to essential living supplies such as rice, flour, soybean oil, and quilts, they also gave an electric bicycle to Yaoyao's mom so that she could return home quickly from the fields to take care of Yaoyao. Yaoyao was in her teens, but she was thin and weak. She had to change full-body dressings every three days. Everyone strongly felt the pain that the rare disease brought to the child and the burden it placed on the family.

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During the conversation, they learned that the child was suffering from dystrophic epidermolysis bullosa. Yaoyao's mom explained that it was a genetic disease. Her skin was extremely prone to fester, and each dressing change required a large amount of gauze and medicine for full-body bandaging, and she could only eat liquid food. The volunteers brought gauze and medicine for Yaoyao's treatment. A representative from Beijing Changier Education Foundation supported of RMB 2,000, encouraging the child and her family to face the situation positively and live optimistically.

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